Saturday, May 25, 2013

A very eventful 3 days - we have a team assembled at Cancer Treatment Centers of America and they are ON the case. :-)

We finished sitting down with Sherman Hospital regarding the funds still owed for treatment over the past year last Wednesday, so we will know how much we still owe once they have sat down with Blue Cross/ Blue Shield and finished final negotiations for what they are covering (this is not a fun process). The hard part is the out of pocket portion after deductibles, in and out of network providers, plus the lab portion (as there were over 5 hospitalizations, you practically need to be an accountant to keep everything straight). Oy.

We are in still in Zion (at the hotel resting comfortably at the Radisson after a long 3 days of poking, prodding, questions, and running all over a hospital). Amazingly, the hotel stay is free for up to 2 weeks during initial assessment (saving us over $1,100). Our food is also being provided free of charge during the initial assessment period also (saving us at least another $400 over the same period). We have the travel trailer prepared for use after the first 2 weeks (if necessary) to keep our housing costs down while in Zion.

• was just preparing all paperwork before driving to Zion, then checking in the hotel and dinner at the hospital (and getting situated).

Yesterday (Thursday):
• began very early (up at 6am to get ready and be at the Cancer Treatment Center by 7:30am for breakfast). 8:15am - Patient Registration, 9am - Escort to Nurse Navigator, 9:15am - sitting down with the Nurse Navigator and going through initial assessment, 10:00am - consult with Michael Delatorre MD, 12:30 pm - lunch, 1pm –labs (urine and blood) , 2pm - reconnect with Nurse Navigator for follow-up on Friday.

Today (Friday):
• 9am – Echocardiogram, 9:35am – Breakfast, 10am – Naturopathic Medicine consult - Erik Boudreau  ND,  10:30am – Nutrition Consult, 10:45am - Nurse Navigator reconnect (schedule adjustment), 11:00am - Pain Management consult – Raed Rahman DO, 12:15pm – Cardiology consult - Samarendra Chandel MD,  12:40pm – Lunch, 1pm – Mind & Body consult – Heather Swick MSMFT, 2pm – Pastoral Care – Andrew Barkley, 2:30pm – Mammogram – Imaging, 3:30pm – Urology consult – Raza Khan MD.

Tomorrow (Saturday):
• 8am – breakfast, 8:30am CT prep, 9:00 CT Scan of lower abdominal area – Imaging, 10am review of schedule based on results of the testing in the past 3 days

• 9am – breakfast, 10am – Oncology consult- Michelle Gershenhorn DO, 11am – Naturopathic consult - Erik Boudreau  ND,  11:30am – Nutrition Consult – Krissy Stodola, Noon – Care Management consult - Michelle Gershenhorn DO, 1:15pm Nurse navigation reconnect, 2pm Physical Therapy Evaluation and treatment – Emmanual Aculado PT, 6:30 pm – reserved.

• 7:30 am – Cystoscopy - – Raza Khan MD (review of bladder, removal of stent, multiple tissue biopsy of Bladder, new stent if necessary)

So we are staying in Zion at least through the first week of June. So we will be spending a lot of time preparing our son Travis for a longer term managing things at home (his going to work and back, taking care of the house, taking care of our 2 dogs). I’ll be going back to Huntley and back at least once every 3 days so I can keep the lawn trim, go through the bills that are coming in, trying to help keep Travis on track where I can. In the interim, I can help Penny while here in Zion (while looking for a job in the evening online).


  1. Wishing you all the best, and in my prayers, as you go on this new journey.

  2. WOW!!! That is one heck of a schedule. It appears CTC has a really good handle on treating the mind as well as the body. That's impressive. I hope Penny and you can "feel" the prayers coming from Farmer City.
    - Don

  3. Garry, much appreciated. :)

    Don, we feel those prayers for sure. :)


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